Shiju Joseph from Chertsey, who works for Barclays has taken up the challenge to help Battens Disease Family Association (BDFA, impacted by the amazing work that the BDFA provide to families affected by Battens disease and in particular Addy Clarke.
Several of his colleagues at Barclays Thames Valley branch are also coming together to get behind the BDFA, moved by the story of Addy Clark and the brilliant work this charity does to support families impacted by this tragic and terminal disease.
Many are unaware of the BDFA and the key support is gives to families impacted by Battens but also little awareness due to the severe rareness of the disease.
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA’s Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.
For further details or to make a donation visit the JustGiving page. https://www.justgiving.com/fundraising/Shiju-Joseph?utm_source=whatsapp&utm_medium=fundraising&utm_content=Shiju-Joseph&utm_campaign=pfp-whatsapp&utm_term=9664dc40b8394df48b69c6b3e9a2f583